Monday, July 20, 2009

And our week of doctor's appointments begins...

We just got back from Ellie's GI appointment. She gained a pound since we last saw them three months ago. She made a giant leap from the .4% to 1.6% on the growth chart!! WOW! (That's me being sarcastic!) I always thought she was on the 3rd? Oh well! She was 25 pounds 9 ounces, but they weigh her with her clothes on, which will only start to bother me if they go back and forth and don't consistently weigh her with them on. I think now that she is on the "big girl scale" they will. She is doing well gaining without using her feeding tube and she gained in height as well. Over all her BMI is at about 3% when they'd like her at 10%. No doctor we've ever been to has said a thing to me about BMI so this is new to me.

Dr. M was very pleased with her progress. We are going to go back in three months. The current plan is to continue on a high calorie diet. Once we have this Diabetes Insipidus thing under control, if she does indeed have it, we will start her on "Magic Milk" which is basically her whole milk mixed with a 1/4 cup of non fat evaporated milk to increase calories and protein. She doesn't want us to start it until the doctor calls with an all clear regarding her DI. We should know by Wednesday whether she has it or not. If she does, we'll have to see an Endocrinologist and there is one at the satellite office we currently go to, so we won't have to travel into Philly and go directly to CHOP. I wouldn't mind, but it's awfully convenient having the office right down the road.

In three months if Ellie is still doing well we are going to wean her off of her Prevacid! I never thought I'd see the day, never mind the meer mention of it. I am eager to get her off of any meds she doesn't need so we'll see! She is what they call a silent refluxer so we'll only know if it works once we get her off and if she starts complaining of pain or her eating slows down.

As far as her mickey button, we will keep it in until she's weaned off of her Prevacid and get the all clear from Cardiology that she won't need any surgeries in the near future... which we don't plan on, but who the hell knows, Ellie keeps us on her toes as far as her medical situation! We're looking at next year now. I'm totally okay with this. It's a nice little crutch if we need it and once it's out it's out and there's no going back unless things get really bad.

I was going to put up some pictures since we spent the last two weekends in Philly, but I can't seem to find the camera. You'll see more at some point this week.

Charlie is doing well. We are waiting on a call back from CHOP with a Urology appointment to let us know once and for all that he has no kidney/bladder issues so there is one less thing we have to worry about. He's sitting up and eating finger foods now. He still misses his mouth most of the time, but it's a work in progress and so fun to watch!

Chris is great. Still enjoying his job. Nothing new to report there.

I'm good. A little over 12 weeks along now. Tonight we go for my first trimester screening to make sure #3 is healthy and doing everything he/she should be doing. I'm excited to get another ultrasound. My OB here is awesome and I've had one at every visit! We go to the hospital where I'll deliver tonight though so that should be neat. OK enough blabbing. I'll update more tomorrow after Ellie's cardiology appointment. That's the one I'm anxious about!

1 comment:

  1. Where are you delivering? Virtua? So glad Ellie's gaining weight - and I'll offer to help with her caloric intakes. Chocolate chip cookies, anyone? Good luck with your appt tonight and Ellie's tomorrow! Update after hear from Charlie's dr on Wednesday too!